tag:blogger.com,1999:blog-6024052500418048211.post5566895795270393526..comments2022-08-06T02:10:19.903-07:00Comments on Utah Chiari Connection: Here we go Utah ChiariansKelly Morrillhttp://www.blogger.com/profile/01229904222737023422noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-6024052500418048211.post-26944305516551484782009-08-07T08:44:03.899-07:002009-08-07T08:44:03.899-07:00Hi Kelly,
My name is Charla Allen and I have Chiar...Hi Kelly,<br />My name is Charla Allen and I have Chiari and Syringomyelia. I just found this website; I was referred to it by a new friend who also has Chiari. I can't tell you what a relief it is for me to find something like this. I was diagnosed with Chiari and Syringomyelia in January 2007, after a year of goose chases and being misdiagnosed. I had decompression surgery in March of 2007, but I am still dealing with chronic pain caused by nerve damage, which was the result of the syrinxes. I realize I have it a lot easier than many other people with Chiari, but it has still changed my life...and me. And it's hard not knowing or having anyone else in my life who understands what this is about. Until now. I want to be a part of this group, and I would like to help out anyway I can. We all need each other. You can contact me via email at primateprincess@yahoo.com. I can give you additional contact information from there. Thank you so much for doing what you're doing. I can't wait to get involved!<br />Sincerely, Charla AllenAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-6024052500418048211.post-59643147906556898172009-08-01T17:10:30.130-07:002009-08-01T17:10:30.130-07:00Erin, That my friend is a welcome relief. Please c...Erin, That my friend is a welcome relief. Please call me - because I need help. We NEED to do a walk. This is a whole new and as far as I can find the only efforts being made by anyone to help those of us with Chiari/SM. We need to start finding and building the funding for the group I hope to soon see become an organization. Please call me 801-643-6193. Thank you for posting the comment. KellyKelly Morrillhttps://www.blogger.com/profile/01229904222737023422noreply@blogger.comtag:blogger.com,1999:blog-6024052500418048211.post-57074918720416424692009-07-31T19:02:03.427-07:002009-07-31T19:02:03.427-07:00Let us know what we can do to help, I would love t...Let us know what we can do to help, I would love to walk for Chiari, so would my son Blake, his brother, and my husband. I'm in law school full-time so I'm home all day. If you need some help making calls, etc. Please let us know. I know we are not the only members that would be willing to help. Just let us know where and how we can lend a hand.Erinhttps://www.blogger.com/profile/11708353976778735016noreply@blogger.com