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UCC Founder
- Kelly Morrill
- Diagnosed ACM/EDS/TC/HYDROCEPHALUS/SUBCRANEAL INSTABILITY. Two decompression surgeries, second was a full sinus, csf leakage on both, viral meningitis,shunt placement surgery, cranial placement surgery, 11 shunt revisions, staff meningitis, TC surgery, awaiting shunt reintronduction surgery. Glad to be alive.
A message from the UCC founder Kelly Morrill
Hello everyone, a special welcome to all of you new to the UCC site. We are all pioneers of Chiari Awareness in the state of Utah. Everything that is happening in this state to aid and support those of us with Chiari as well as our friends and family members begins here. Everyone who joins this site and are willing to volunteer their time to the establishment of this foundation please become actively involved in watching this site on a daily bases. I need your contact information. It's so important that we get these support groups going, that we get the proclamation for the state of Utah written and signed by the governor, but most importantly signed by as many of us with Chiari as we can find,and it's so important that the UCC becomes an active and legal foundation. Soon this site will be filled with scheduled events, the stories of different Chiarians, and special announcements. I have SO MANY IDEAS and I'd like to see each of them become more than a dream - But a reality,and I want your ideas joined with mine. This isn't about me doing something great, it's about US making life better for Chiari sufferers and their families. WE NEED TO MAKE THIS HAPPEN TOGETHER.
What Is Chiari?
Chiari malformation is an abnormality in the lower part of the brain called the cerebellum. The most common type is the Chiari I malformation (CM). It is also known as Arnold-Chiari malformation, tonsillar herniation or tonsillar ectopia.
More Information on Chiari
Join Us - Zipperheads Unite!
One of My Favorite Quotes
What lies behind us and what lies before us are small matters compared to what lies within us. Ralph Waldo Emerson
My Personal Thanks
Thank you, Becky Andrews, LPC, who went through back doors as a therapist to get me to where I could accept myself with Chiari and my future whatever it brings. She is the reason I started blogging, she's the reason I agreed to setting up this Utah Chapter, she's the reason I know I can live even with Chiari and continue forward with a goal to help others. I didn't trust her as a therapist, I didn't believe she could get me to pull things out of myself and talk about them. When I looked at her as a therapist I couldn't, when I believed her to be a friend it was like flowing water.
11 comments:
to Kellys family and friends...i have only today learned about Kelly and all that she was trying to accomplish for all of us that suffer with chiari. i am greatly saddened that i never had the opportunity to speak with her personally...
please know and take comfort in the knowledge that thru her passing, thousands of chiarians now not only know who she was and what she was trying to accomplish, but cherish her memory and mourn the loss of a brilliant and passionate woman whose bright light will shine on thru all of us.
may you find peace and comfort knowing how very many lives she has touched thru out the world. there are even members that i know in ireland and australia to name just 2 other countries that are praying that she is in the arms of our Lord and saviour now and at peace. take pride in all that your wife, mother, daughter and friend has accomplished in her short time here. no doubt, she is organizing another crusade in heaven as we speak!
may God bless you and keep you and bring you peace..
with respect,
elizabeth harris
medhelp.com
username n40066
Kelly has been a friend for years, more than a friend, she was a sister to me. Always there to hear what I had to say. She contacted me before I left for vacation, frightened with new symptoms that she was having, she wanted to know if I had heard of anyone else that had the same type of symptoms. I told her I'd take my lap top with me and I'd call her when we got to our destination. She passed away while we were on our way. She had already been to the ER 2-3 times and they couldn't figure out what was happening to her. It breaks my heart that no one was able to help her in this time of pain and fear.
I will never forget our hours of laughter on the phone, talking about our children and husbands. We debated who had the best hubby and kids. We agreed, she had more great kids :)
Kelly was a wonderful woman, always looking out for the other person. She sent people to pray with me prior to one of my surgeries. She would send me a rose out of the clear blue.
I will miss my friend, my sister. I want Rob, kids, and Kelly;s family, and friends to know she was loved by many. May we all learn from her kind heart to love like she has.
Kathleen
So why haven't you filed for Disability? Anything dealing with the Brain is the fastest to get approved and it takes two years for Medicare after that. Medicaid pays for everything while you wait.I ,too, suffer from a brain disease for 54 years. and worked with it for over 27 years before it became to far advanced and I went on Disability.
I just found this blog through an article about Kelly in the Standard Examiner. I'm sorry that Kelly is no longer living and wish to express my sympathies to her husband and family.
Now that I am aware of a Utah movement to spread awareness of CM, I will be watching to see if there are future events that I can support. Again, all the best to you at this time of loss.
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