Okay - here's the thing. Today I am writing the "Proclamation" for the State of Utah. I also am going to call the State Governors office and begin the process of getting this proclamation signed. As the group grows and I am getting active comments from the group we will be making plans to get to the State Capital all of us together and as many news and television stations as we can get there and we are all going to sign this "Proclamation" together. My hopes are to have at least 30 people with Chiari there. I'd even love to see the signiture of little chiari hands on there. This "Proclamation" for Utah is going to be a BIG, HUGELY BIG help for every one of us. It will open awareness and make it easier for applications for Medicare, and Social Security Disability to be accepted. It will help many of us get the Handicapped stickers on our liscence plates easier. It's going to unite the medical community with US as they realize that WE must and will fight to get the best care.
I'm a born fighter guys. The reason I am doing this is because I haven't had to go through all that I have. IF I can keep any of you from going through what I have and am going through. I honestly will be happy. I could die feeling like I left each of you in a better situation.
If WE cannot get the walk organized for this year. OUR next big step is our organizing support groups. "I" don't like all the "I's" in this post. But - time is running out and things need to get going. The reason I don't like the "I's" is this isn't my battle to be fought alone. It's something that WE need to do together. I need an active commitee around me so things will go much better. If I do this along than Utah will not become the best Chiari supported state in the Nation. That's what I want it to be.
I have a lot of goals! I've had to give up a lot of goals because of Chiari. And a whole lot of dreams too. CHIARI DOES THAT! I know I"m not alone. Chiari can't take these goals away. We can't let it.
"I have Chiari, BUT Chiari doesn't have me" that's my " " - I will NEVER LET IT! I wont let it get you either! God Bless ya'all!