I thought I'd let you all know what we are going to be talking about at the meeting. First of all the month of September has been designated as Chiari Awareness month. I volunteered to establish the activities for the State of Utah. The meeting is to get these things organized. Here is a list of things we will be discussing in the meeting.
#1 Finding as many of the Chiari sufferers in the State of Utah as we can.
#2 The Proclamation on Chiari Awareness
#3 The Chiari walk for the cure
#4 Support Groups
Right now these are pretty much the most important things that need to get accomplished. There are other things that need to be established here in Utah, however those will come. We have much that we need to get going September is right around the corner. I really appreciate your help. I don't even know that I really asked you for your help, that's pretty rude of me. I apologize for that. We need to meet within the next few weeks. I am waiting for some business cards I had made to get here - I'd like to have them with me at the meeting. Again ... thank you for your willingness to help - there are a lot of lonely and struggling chiarians and family members who need help. I look forward to hearing from you all and I look even more forward to meeting you. We have a member of our group heading to NY and the chiari institute for surgery. Keep he and his family in your thoughts and prayers. Bryce and Kellye - our hearts are with you.