Sunday, August 30, 2009

SORRY GUYS! SORRY! I had a really bad set back and am just getting back on my feet.

I need support on this meeting. IT HAS TO HAPPEN! ASAP! Please - let me know you will be there when I set it up. I guess I could have the meeting alone, with myself, however - I already told myself everything I need to tell you so I just now need to know who else wants to hear it and is willing to help.

If your truly reading these posts you have come acquainted with Suzanne who has left two wonderful comments on my most recent post. I am fully in support of Suzanne's idea about having a garage sale and everyone putting what they can in with all proceeds to go to - Suzanne if you'll back me up on this "The Utah Chiari Connection". I am not sure what it takes to become a legally recognized non profit group in the State, but if we do get together, we can start to organize and find the answer to that.

Guys - winter is just a few months away. I personally am already dreading the pain I suffer through during those months between Nov. and March. Yes - I'll loose more weight (Heaven only know's I can alway use that - Now anyway but - almost, not any more) It's a hard way to loose it though. WE NEED TO GET THE SUPPORT GROUPS ESTABLISHED NOW! And we Have To Start FUND RAISING or the first place I purpose that those funds be used will be in effective.

We need Digital Camera's. and wide screen TV's so that the support groups we get actively going on a month to month basis can get to those unable or to far away from the sessions.

I know people need you, I know I need you, maybe you need others. Doesn't matter if you have Chiari yourself or a loved one does it's not an easy road. I will break into my personal self and tell you something not even my husband knows. I can't count the times I've wished in the past that I could take my life. I came very close a few times. A huge % of marriages break up over what we are going through. We can keep that from happening, all of us together. We can help our youngest friend on this site get involved as much as he can at finding others his age and getting teen groups set up. I would have taken my life - however - I've come to depend upon someone I have found has never left my side, and when I've been most alone He's wrapped me in His most loving arms and Carried Me Through. HE - has taught me to value my life - even with Chiari. Sometimes even now it's a hard perspective to keep. I thank Him, I love Him, and I dedicate my life to helping others keep that same perspective. I have spoken to several destitute Chiari Sufferers, we all need help at some time or another at dealing with this painful and lonely malformation. Let's please make sure that we never leave even one of us to suffer it without an understanding ear ever again.

Join with me NOW!!! Please!!!!! We have soooooooooo much to do.


Anonymous said...

Kelly - I'm so sorry I haven't stayed in contact better. This summer has been so busy. I have had to get my son graduated and his Eagle Project finished. I don't check my e-mail very often but now that my kids are back in school I have some time. What can I do to help? Alisa

Kelly Morrill said...

Alisa, I first need your help with getting together and getting organized. Getting the "Proclamation" or "Declaration" (As Utah calls it) signed is further down the road at this point. Right now, we need things set up to help people get through this struggle.
I have yet to find a fellow Chiarian who isn't in need of emotional help. I know what I've been through and I know what you've been through and we need to make sure that everyone we can locate has a support system behind them. Someone to call and talk to when they just feel like they can't endure another moment.

That's number one on the list of importance in my mind. But to support this effort we seriously need to get some fund raising going. Right now the Base Exchange has several different flat screen TV's being cleared out. The price is outrageously low. I wish I was rich and I would have bought a few of them. I do have access to that and no tax, which is always nice.